New site/new update

Arielle has a new web site: www.angelphace.com. We appreciate how many people have wanted to experience this journey with us, and hope this will be an easier way to communicate from this point on. For some of you, our updates are probably too much information. For others, not nearly enough. To receive any future updates, you will need to either 1) reply to this email and tell us to subscribe you, or 2) sign-up yourself at the web site. Our blog will turn into more of the day-to-day cutesy baby stuff grandparents and the like can’t get enough of.

You’ll find the latest update in greater detail on the site, and much more. Short version: we’ve had lots more tests since our last update. Once again, far more encouraging news than the “tough stuff,” but we’re still struggling to get the hemangioma to stop growing. It has the ability to destroy anything in its path, so that is the number one thing on our minds, hearts and prayers at this time.

And for you photo lovers, this one captures just how much Arielle has grown – including her precious gummy grin.

Lastly, a quick plug for the “Mighty Quinn,” a little boy that has had a much rougher time with PHACE than Arielle. His parents are desperate to fund a trip to New York for him to receive an important operation. Details can be found here: http://www.helpquinn.com/. If you’re looking to gain good karma, transfer a day or two of your Starbucks fund to his airfare and the universe will thank you.

Thanks,
Mary Alice, Travis and Baby Arielle